“Duchenne has robbed him of so, so much.”
The family of Archie Naughton has penned a moving tribute to their beloved son after his untimely death.
The Roscommon boy was diagnosed with Duchenne Muscular Dystrophy in 2012.
Duchenne muscular dystrophy (DMD) affects the muscles, leading to muscle wasting that gets worse over time.
Earlier this year, his condition worsened and he was taken to the Mater Hospital.
Archie Naughton went into heart failure a short time after.
In a moving post on Facebook, Archie’s mother said the incurable disease robbed him of so much.
“As parents, our only concern ever is to protect our child(ren). However, sometimes things happen that you have absolutely no control over.”
“Duchenne is one such thing. Our beautiful heroic son Archie John has died and our hearts are smashed into millions of pieces. We shall never recover.”
When words contine to be utterly inadequate #PrayForArchie #NeverEVERGiveUp
Archie is struggling to stay awake now.
He asked had anyone else sent him a video message He told me, "the video messages give me a BIG Boost Mumma". If you can pls send hime one to encourage him ?? pic.twitter.com/TaflN4nQXb— Join Our Boys Trust (@joinourboys) July 6, 2022
His mum said they will miss his smile, his warmth, and his humour.
“The void he has left is vast and dark and catastrophic.”
“He did not want to leave us and he fought and fought to stay here. He had so many dreams and plans for the future. Duchenne has robbed him of so, so much.”
“Forever in our hearts and minds and forever 16 years old.”
“Thank you most sincerely, Archie, for showing us how to live life to the full and for never ever giving up.”
We’re keeping Archie’s family, especially his parents and brothers Isaac and George in our thoughts during this harrowing time.
Feature: Join Our Boys Trust
